Dementia Resources & Support
At DOSTIA, we believe that people affected by dementia in South Asian and wider ethnic minority communities deserve access to clear, culturally relevant information and support. This page brings together trusted resources to help you understand dementia, find support, and get involved in research that shapes better care for our communities.
If You're Worried About Your Memory or Someone You Know, Start Here
Helplines
Alzheimer's Society National Helpline:Â 0333 150 3456 (available in multiple languages)
Dementia UK Helpline:Â 0800 888 6678
Your GP – the first step to getting your memory checked and support
Resources in South Asian Languages
We've highlighted resources specifically created for South Asian communities, with information in Punjabi, Hindi, Urdu, Gujarati, Bengali and other languages.
Punjabi Resources
10-minute video explaining dementia (Punjabi, with English subtitles) – narrated by Harjinder Kaur
3-minute personal story – Bhagwant's experience of living with Alzheimer's
Translated leaflets:
"5 things to know about dementia"
"Worried about your memory?"
Access all resources:Â www.alzheimers.org.uk/punjabi
Dr Karan Jutlla's Resources
Videos, leaflets and information about dementia diagnosis and support
www.drjutlla.com/resources/Â Â
Alzheimer's Research UK
Quick Guides to Dementia – simple explanations of what dementia is, risk factors and support
Available in:Â Arabic, Bengali, Gujarati, Punjabi, Urdu, English and Welsh
ADaPT Toolkit
South Asian Dementia diAgnosis PaThway)
Comprehensive online toolkit created specifically for South Asian communities
Includes:
Short films and animations explaining dementia
Awareness materials to share with family and friends
Information on getting a diagnosis
Post-diagnostic support and living well
Hosted by:Â Race Equality Foundation
Specialist Support Services
We've highlighted resources specifically created for South Asian communities, with information in Punjabi, Hindi, Urdu, Gujarati, Bengali and other languages.
Dementia UK Admiral Nurse Clinics
Admiral Nurses are specialist dementia nurses who provide free, expert support to people living with dementia and their families.
We're advocating for an Admiral Nurse clinic dedicated to South Asian communities. In the meantime, please contact the team above – they can signpost you to culturally appropriate support.
General Dementia Helpline:Â 0800 888 6678
Black, African and Caribbean Communities Admiral Nurse Clinic – culturally sensitive support tailored to your community
Email:Â blacclinics@dementiauk.org
Chinese Communities Admiral Nurse Clinic – support in Cantonese and Mandarin
Email:Â CWTANclinic@dementiauk.org
Alzheimer's Society
General Support Services
One-to-one support and advice
Information and factsheets (many available in community languages)
Local services and activities
Website:Â www.alzheimers.org.uk
Helpline:Â 0333 150 3456
Information for Professionals
If you're a healthcare professional, carer, or community worker supporting South Asian people affected by dementia.
Remember, we also provide bespoke education and training for health and social care services
Race Equality Foundation
Resources for professionals working with BAME communities
Evidence-based guidance on culturally competent care
Website:Â www.raceequalityfoundation.org.uk
Dementia Alliance for Culture & Ethnicity (DEMACE)
Dementia UK – Professional Resources
Training and support for healthcare staff
Website:Â www.dementiauk.org
Dr Karan Jutlla
Why We Share These Resources
South Asian communities in the UK face real barriers to dementia diagnosis and support:
No direct word for dementia in many South Asian languages
Meaning symptoms are often seen as "just ageing"
Late diagnosis
Often at crisis point, when more support is needed
Stigma and isolation
Families may feel ashamed to seek help
Language barriers
Difficulty accessing mainstream services
Information barriers
Lack of culturally appropriate information about what dementia is and how it can be managed
Keep this information safe
Please feel free to share this page with family, friends and community members who might benefit. You can also:
Print this page and share it with your GP, community centre or place of worship
Share the link to specific resources with people in your community
Contact DOSTIA if you'd like printed copies of any resources in your language
We believe everyone affected by dementia deserves dignity, respect, and care that reflects their values and culture.
If You Can't Find What You Need
If you're looking for support and haven't found what you need on this page, please:
Contact DOSTIA directly →
We can help signpost you to appropriate service
Call the Alzheimer's Society Helpline
0333 150 3456 (they can help with language-specific queries)
Speak to your GP
They can refer you to local dementia services and support